{"id":207816,"date":"2023-04-17T08:27:23","date_gmt":"2023-04-17T08:27:23","guid":{"rendered":"https:\/\/chungjansensyndrome.eu\/?page_id=207816"},"modified":"2026-08-25T07:13:29","modified_gmt":"2026-08-25T07:13:29","slug":"agenda","status":"publish","type":"page","link":"https:\/\/chungjansensyndrome.eu\/en\/news\/agenda\/","title":{"rendered":"Agenda"},"content":{"rendered":"

[et_pb_section fb_built=”1″ custom_padding_last_edited=”on|phone” admin_label=”Title Section” _builder_version=”4.20.2″ _module_preset=”default” background_enable_color=”off” use_background_color_gradient=”on” background_color_gradient_stops=”rgba(13,75,126,0.95) 0%|rgba(13,75,126,0.95) 100%” background_color_gradient_overlays_image=”on” background_image=”https:\/\/chungjansensyndrome.eu\/wp-content\/uploads\/2023\/02\/dna-1811955_1920.jpg” custom_margin=”-200px||||false|false” custom_padding=”250px||||false|false” custom_padding_tablet=”250px||||false|false” custom_padding_phone=”190px||0px||false|false” global_colors_info=”{}”][et_pb_row _builder_version=”4.19.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.19.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text admin_label=”Agenda” _builder_version=”4.20.4″ text_font=”||||||||” header_font=”Montserrat|700|||||||” header_text_align=”center” header_text_color=”#f7f7f7″ header_font_size=”60px” header_line_height=”1.3em” custom_margin=”||||false|false” header_font_size_tablet=”60px” header_font_size_phone=”30px” header_font_size_last_edited=”on|phone” locked=”off” global_colors_info=”{}”]<\/p>\n

Agenda<\/h1>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ custom_padding_last_edited=”on|phone” _builder_version=”4.20.2″ _module_preset=”default” background_color=”#FFFFFF” custom_margin=”||||false|false” custom_padding=”||||false|false” custom_padding_tablet=”||||false|false” custom_padding_phone=”0px||0px||false|false” global_colors_info=”{}”][et_pb_row column_structure=”3_5,2_5″ make_equal=”on” _builder_version=”4.20.4″ _module_preset=”default” width_tablet=”” width_phone=”90%” width_last_edited=”on|phone” global_colors_info=”{}”][et_pb_column type=”3_5″ _builder_version=”4.19.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text admin_label=”Online or Live Events” _builder_version=”4.20.4″ text_font=”Montserrat|500||on|||||” text_text_color=”#353740″ text_font_size=”16px” text_letter_spacing=”3px” custom_margin=”||20px||false|false” custom_padding=”||||false|false” animation_direction=”bottom” locked=”off” global_colors_info=”{}”]Online or Live Events[\/et_pb_text][et_pb_divider color=”#E02B20″ divider_weight=”3px” _builder_version=”4.20.2″ _module_preset=”default” max_width=”60px” custom_margin=”||15px||false|false” global_colors_info=”{}”][\/et_pb_divider][et_pb_text _builder_version=”4.20.4″ text_font=”Montserrat||||” text_text_color=”#747d88″ text_line_height=”1.8em” link_font=”|700|||||||” link_text_color=”#0d4b7e” header_font=”||||||||” header_3_font_size=”18px” text_orientation=”justified” custom_margin=”||||false|false” custom_padding=”||||false|false” animation_direction=”top” text_font_size_tablet=”” text_font_size_phone=”16px” text_font_size_last_edited=”on|phone” locked=”off” global_colors_info=”{}”]On this page all relevant online or live events are listed that can be attended bij parents, caregivers or adults with the syndrome. These events can include information about Chung-Jansen syndrome or information in general about rare diseases \/ syndromes.[\/et_pb_text][\/et_pb_column][et_pb_column type=”2_5″ _builder_version=”4.20.4″ _module_preset=”default” background_enable_image=”off” global_colors_info=”{}”][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ custom_padding_last_edited=”on|phone” _builder_version=”4.20.2″ _module_preset=”default” background_color=”#f7f7f7″ background_image=”https:\/\/chungjansensyndrome.eu\/wp-content\/uploads\/2023\/01\/dna-grayscale-op.jpg” custom_margin=”||||false|false” custom_padding=”||54px||false|false” custom_padding_tablet=”||54px||false|false” custom_padding_phone=”0px||0px||false|false” global_colors_info=”{}”][et_pb_row disabled_on=”off|off|off” _builder_version=”4.21.0″ _module_preset=”default” background_color=”#FFFFFF” width_tablet=”” width_phone=”90%” width_last_edited=”on|phone” custom_margin=”50px||50px||false|false” custom_margin_tablet=”50px||50px||false|false” custom_margin_phone=”0px||0px||false|false” custom_margin_last_edited=”on|phone” custom_padding=”||||false|false” background_color_phone=”rgba(255,255,255,0)” background_last_edited=”on|phone” background_enable_color_phone=”on” box_shadow_style=”preset1″ box_shadow_color_tablet=”” box_shadow_color_phone=”rgba(0,0,0,0)” box_shadow_color_last_edited=”on|phone” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.20.2″ _module_preset=”default” custom_padding=”||||false|false” global_colors_info=”{}”][et_pb_blurb title=”First European PHIP\/Chung-Jansen Syndrome Conference, November 12th 2027″ use_icon=”on” font_icon=”||divi||400″ icon_color=”#E02B20″ icon_placement=”left” disabled_on=”off|off|off” admin_label=”Family Video Meeting with Dr. Chung and her team” _builder_version=”4.27.5″ _module_preset=”default” header_level=”h1″ header_text_color=”#353740″ header_font_size=”16px” body_font=”Montserrat||||||||” body_link_font=”|700|||||||” body_link_text_color=”#0d4b7e” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]November 12th 2027, Amsterdam UMC<\/span><\/p>\n

Save the date: First European PHIP\/Chung-Jansen Syndrome Conference. Further information about the programme and registration will follow!<\/p>\n

[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][et_pb_row disabled_on=”off|off|off” _builder_version=”4.21.0″ _module_preset=”default” background_color=”#FFFFFF” width_tablet=”” width_phone=”90%” width_last_edited=”on|phone” custom_margin=”50px||50px||false|false” custom_margin_tablet=”50px||50px||false|false” custom_margin_phone=”0px||0px||false|false” custom_margin_last_edited=”on|phone” custom_padding=”||||false|false” background_color_phone=”rgba(255,255,255,0)” background_last_edited=”on|phone” background_enable_color_phone=”on” box_shadow_style=”preset1″ box_shadow_color_tablet=”” box_shadow_color_phone=”rgba(0,0,0,0)” box_shadow_color_last_edited=”on|phone” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.20.2″ _module_preset=”default” custom_padding=”||||false|false” global_colors_info=”{}”][et_pb_blurb title=”Family Video Meeting with Dr. Chung and her team” use_icon=”on” font_icon=”||divi||400″ icon_color=”#E02B20″ icon_placement=”left” disabled_on=”off|off|off” admin_label=”Family Video Meeting with Dr. Chung and her team” _builder_version=”4.21.0″ _module_preset=”default” header_level=”h1″ header_text_color=”#353740″ header_font_size=”16px” body_font=”Montserrat||||||||” body_link_font=”|700|||||||” body_link_text_color=”#0d4b7e” global_colors_info=”{}”]November 2nd 2024 at 12:00 PM East Coast US Time<\/span><\/p>\n

If you are a parent\/caregiver of a child with Chung-Jansen syndrome or an adult with the syndrome you can register via the private Facebook group PHIP Kids<\/a><\/p>\n

[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.20.2″ _module_preset=”default” background_color=”#FFFFFF” width_tablet=”” width_phone=”90%” width_last_edited=”on|phone” custom_margin=”50px||50px||false|false” custom_margin_tablet=”50px||50px||false|false” custom_margin_phone=”0px||0px||false|false” custom_margin_last_edited=”on|phone” custom_padding=”||||false|false” background_color_phone=”rgba(255,255,255,0)” background_last_edited=”on|phone” background_enable_color_phone=”on” box_shadow_style=”preset1″ box_shadow_color_tablet=”” box_shadow_color_phone=”rgba(0,0,0,0)” box_shadow_color_last_edited=”on|phone” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.20.2″ _module_preset=”default” custom_padding=”||||false|false” global_colors_info=”{}”][et_pb_blurb title=”Family video meeting with Dr. Chung” use_icon=”on” font_icon=”||divi||400″ icon_color=”#E02B20″ icon_placement=”left” admin_label=”Family video meeting with Dr. Chung (for parents\/caregivers and adults with the syndrome)” _builder_version=”4.21.0″ _module_preset=”default” header_level=”h1″ header_text_color=”#353740″ header_font_size=”16px” body_font=”Montserrat||||||||” body_link_font=”|700|||||||” body_link_text_color=”#0d4b7e” global_colors_info=”{}”]13th of januari 2024, 12:00 East Coast US Time<\/span><\/p>\n

Family video meeting with Dr. Chung (for parents\/caregivers and adults with the syndrome).
\nIf you are a parent\/caregiver of a child with Chung-Jansen syndrome or an adult with the syndrome you can register via the private Facebook group ‘PHIP kids’<\/a>.<\/p>\n

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AgendaOnline or Live EventsOn this page all relevant online or live events are listed that can be attended bij parents, caregivers or adults with the syndrome. These events can include information about Chung-Jansen syndrome or information in general about rare diseases \/ syndromes.November 12th 2027, Amsterdam UMCSave the date: First European PHIP\/Chung-Jansen Syndrome Conference. Further […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":1071,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-207816","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/chungjansensyndrome.eu\/en\/wp-json\/wp\/v2\/pages\/207816","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/chungjansensyndrome.eu\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/chungjansensyndrome.eu\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/chungjansensyndrome.eu\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/chungjansensyndrome.eu\/en\/wp-json\/wp\/v2\/comments?post=207816"}],"version-history":[{"count":24,"href":"https:\/\/chungjansensyndrome.eu\/en\/wp-json\/wp\/v2\/pages\/207816\/revisions"}],"predecessor-version":[{"id":210502,"href":"https:\/\/chungjansensyndrome.eu\/en\/wp-json\/wp\/v2\/pages\/207816\/revisions\/210502"}],"up":[{"embeddable":true,"href":"https:\/\/chungjansensyndrome.eu\/en\/wp-json\/wp\/v2\/pages\/1071"}],"wp:attachment":[{"href":"https:\/\/chungjansensyndrome.eu\/en\/wp-json\/wp\/v2\/media?parent=207816"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}