{"id":1081,"date":"2023-02-06T13:15:11","date_gmt":"2023-02-06T13:15:11","guid":{"rendered":"https:\/\/chungjansensyndrome.eu\/?page_id=1081"},"modified":"2026-08-25T07:30:51","modified_gmt":"2026-08-25T07:30:51","slug":"documents-and-media","status":"publish","type":"page","link":"https:\/\/chungjansensyndrome.eu\/en\/news\/documents-and-media\/","title":{"rendered":"Documents and Media"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;Title Section&#8221; _builder_version=&#8221;4.20.2&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_stops=&#8221;rgba(13,75,126,0.95) 0%|rgba(13,75,126,0.95) 100%&#8221; background_color_gradient_overlays_image=&#8221;on&#8221; background_image=&#8221;https:\/\/chungjansensyndrome.eu\/wp-content\/uploads\/2023\/02\/dna-1811955_1920.jpg&#8221; custom_margin=&#8221;-200px||||false|false&#8221; custom_padding=&#8221;250px||||false|false&#8221; custom_padding_tablet=&#8221;250px||||false|false&#8221; custom_padding_phone=&#8221;190px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Documents&#8221; _builder_version=&#8221;4.21.0&#8243; text_font=&#8221;||||||||&#8221; header_font=&#8221;Montserrat|700|||||||&#8221; header_text_align=&#8221;center&#8221; header_text_color=&#8221;#f7f7f7&#8243; header_font_size=&#8221;60px&#8221; header_line_height=&#8221;1.3em&#8221; custom_margin=&#8221;||||false|false&#8221; header_font_size_tablet=&#8221;60px&#8221; header_font_size_phone=&#8221;30px&#8221; header_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1>Documents &#038; Media<\/h1>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.20.2&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; custom_padding_tablet=&#8221;||||false|false&#8221; custom_padding_phone=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;3_5,2_5&#8243; make_equal=&#8221;on&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;3_5&#8243; _builder_version=&#8221;4.19.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Handouts, Scientific Articles and PHIP Outpatient Clinic Information&#8221; _builder_version=&#8221;4.21.0&#8243; text_font=&#8221;Montserrat|500||on|||||&#8221; text_text_color=&#8221;#353740&#8243; text_font_size=&#8221;16px&#8221; text_letter_spacing=&#8221;3px&#8221; custom_margin=&#8221;||20px||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; animation_direction=&#8221;bottom&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]Handouts, Scientific Articles and PHIP Outpatient Clinic Information[\/et_pb_text][et_pb_divider color=&#8221;#E02B20&#8243; divider_weight=&#8221;3px&#8221; _builder_version=&#8221;4.20.2&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;60px&#8221; custom_margin=&#8221;||15px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_divider][et_pb_text _builder_version=&#8221;4.21.0&#8243; text_font=&#8221;Montserrat||||&#8221; text_text_color=&#8221;#747d88&#8243; text_line_height=&#8221;1.8em&#8221; link_font=&#8221;|700|||||||&#8221; link_text_color=&#8221;#0d4b7e&#8221; header_font=&#8221;||||||||&#8221; header_3_font_size=&#8221;18px&#8221; text_orientation=&#8221;justified&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; animation_direction=&#8221;top&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;16px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>On this page you can find all documentation (downloads) with information on the syndrome, which can be helpful in explaining the syndrome to friends, family, care providers or other people who are involved.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;2_5&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; background_enable_image=&#8221;off&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; custom_css_main_element=&#8221;z-index:1000&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;1&#8243; make_equal=&#8221;on&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; custom_margin=&#8221;-100px||||false|false&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.5&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; custom_padding=&#8221;40px|40px|40px|40px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Handouts&#8221; _builder_version=&#8221;4.21.0&#8243; text_font=&#8221;Montserrat|500||on|||||&#8221; text_text_color=&#8221;#353740&#8243; text_font_size=&#8221;16px&#8221; text_letter_spacing=&#8221;3px&#8221; custom_margin=&#8221;||||false|false&#8221; animation_direction=&#8221;bottom&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]Handouts[\/et_pb_text][et_pb_divider color=&#8221;#E02B20&#8243; divider_weight=&#8221;3px&#8221; _builder_version=&#8221;4.19.5&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;60px&#8221; custom_margin=&#8221;15px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_divider][et_pb_text disabled_on=&#8221;on|on|on&#8221; _builder_version=&#8221;4.21.0&#8243; text_font=&#8221;Montserrat||||&#8221; text_text_color=&#8221;#747d88&#8243; text_line_height=&#8221;1.8em&#8221; header_font=&#8221;||||||||&#8221; text_orientation=&#8221;justified&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; animation_direction=&#8221;top&#8221; disabled=&#8221;on&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Handout with information on the syndrome in different languages.<\/p>\n<p>\n<a href=\"https:\/\/drive.google.com\/file\/d\/1lhnV76AwXSuRC3i5rUpbDasHp9-67p7U\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer English (EN)<\/a><\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/1szOIS8QUcGSBGzBeCZJTyN-LqJvSfbMz\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer Spanish (ES)<\/a><\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/15f4a8lpPgeuqgGVLdmG0MRLUGFQ2-Plk\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer Dutch (NL)<\/a><\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/1DTIS3sXtFbNPyXdMAnYtHeZPybpL4_MQ\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer French (FR)<\/a><\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/1AcQQoi6EadrVHEuCnodCFy9DcPhdxBxS\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer German (DE)<\/a><\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/1zdC1SjyLYfWlMRwwT9BbHSXt2bzR1gUi\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer Italian (IT)<\/a><\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/1mj-6Hs0F3JEn9SRO1P6el5pI7PnCAzUr\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer Portuguese (PT)<\/a><\/p>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Information Booklet on Caring for and Raising Children with Chung-Jansen Syndrome (EN)&#8221; 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_builder_version=&#8221;4.19.5&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;60px&#8221; custom_margin=&#8221;15px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_divider][et_pb_blurb title=&#8221;Facebook NL&#8221; url=&#8221;https:\/\/www.facebook.com\/groups\/288279129097773&#8243; url_new_window=&#8221;on&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xe093;||divi||400&#8243; icon_color=&#8221;#0d4b7e&#8221; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;15px&#8221; admin_label=&#8221;Facebook NL&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_text_color=&#8221;#0d4b7e&#8221; header_font_size=&#8221;14px&#8221; custom_padding=&#8221;|||0px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Facebook DE&#8221; url=&#8221;https:\/\/www.facebook.com\/groups\/837346759998453?group_view_referrer=search#!\/groups\/837346759998453?view=info&#038;refid=18&#8243; url_new_window=&#8221;on&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xe093;||divi||400&#8243; icon_color=&#8221;#0d4b7e&#8221; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;15px&#8221; admin_label=&#8221;Facebook DE&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_text_color=&#8221;#0d4b7e&#8221; header_font_size=&#8221;14px&#8221; custom_padding=&#8221;|||0px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Facebook World&#8221; url=&#8221;https:\/\/www.facebook.com\/groups\/1486618044722353&#8243; url_new_window=&#8221;on&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xe093;||divi||400&#8243; icon_color=&#8221;#0d4b7e&#8221; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;15px&#8221; admin_label=&#8221;Facebook World&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_text_color=&#8221;#0d4b7e&#8221; header_font_size=&#8221;14px&#8221; 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custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; custom_css_main_element=&#8221;z-index:1000&#8243; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;1&#8243; make_equal=&#8221;on&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; custom_margin=&#8221;-100px||||false|false&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.5&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; custom_padding=&#8221;40px|40px|40px|40px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Handouts&#8221; _builder_version=&#8221;4.21.0&#8243; text_font=&#8221;Montserrat|500||on|||||&#8221; text_text_color=&#8221;#353740&#8243; text_font_size=&#8221;16px&#8221; text_letter_spacing=&#8221;3px&#8221; custom_margin=&#8221;||||false|false&#8221; animation_direction=&#8221;bottom&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]Handouts[\/et_pb_text][et_pb_divider color=&#8221;#E02B20&#8243; divider_weight=&#8221;3px&#8221; _builder_version=&#8221;4.19.5&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;60px&#8221; custom_margin=&#8221;15px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_divider][et_pb_text disabled_on=&#8221;on|on|on&#8221; _builder_version=&#8221;4.21.0&#8243; text_font=&#8221;Montserrat||||&#8221; text_text_color=&#8221;#747d88&#8243; text_line_height=&#8221;1.8em&#8221; header_font=&#8221;||||||||&#8221; text_orientation=&#8221;justified&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; animation_direction=&#8221;top&#8221; disabled=&#8221;on&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Handout with information on the syndrome in different languages.<\/p>\n<p>\n<a href=\"https:\/\/drive.google.com\/file\/d\/1lhnV76AwXSuRC3i5rUpbDasHp9-67p7U\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer English (EN)<\/a><\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/1szOIS8QUcGSBGzBeCZJTyN-LqJvSfbMz\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer Spanish (ES)<\/a><\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/15f4a8lpPgeuqgGVLdmG0MRLUGFQ2-Plk\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer Dutch (NL)<\/a><\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/1DTIS3sXtFbNPyXdMAnYtHeZPybpL4_MQ\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer French (FR)<\/a><\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/1AcQQoi6EadrVHEuCnodCFy9DcPhdxBxS\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer German (DE)<\/a><\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/1zdC1SjyLYfWlMRwwT9BbHSXt2bzR1gUi\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer Italian (IT)<\/a><\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/1mj-6Hs0F3JEn9SRO1P6el5pI7PnCAzUr\/view?usp=sharing\" target=\"blank\" rel=\"noopener\">Flyer Portuguese (PT)<\/a><\/p>\n<p>[\/et_pb_text][et_pb_blurb title=&#8221;Flyer English(EN)&#8221; 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url_new_window=&#8221;on&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xf1c1;||fa||400&#8243; icon_color=&#8221;#0d4b7e&#8221; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;15px&#8221; admin_label=&#8221;Flyer French(FR)&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_text_color=&#8221;#0d4b7e&#8221; header_font_size=&#8221;14px&#8221; custom_padding=&#8221;|||0px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Flyer German(DE)&#8221; url=&#8221;https:\/\/drive.google.com\/file\/d\/1AcQQoi6EadrVHEuCnodCFy9DcPhdxBxS\/view?usp=sharing&#8221; url_new_window=&#8221;on&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xf1c1;||fa||400&#8243; icon_color=&#8221;#0d4b7e&#8221; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;15px&#8221; admin_label=&#8221;Flyer German(DE)&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_text_color=&#8221;#0d4b7e&#8221; 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font_icon=&#8221;&#xf1c1;||fa||400&#8243; icon_color=&#8221;#0d4b7e&#8221; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;15px&#8221; admin_label=&#8221;Flyer Portuguese(PT)&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_text_color=&#8221;#0d4b7e&#8221; header_font_size=&#8221;14px&#8221; custom_padding=&#8221;|||0px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f7f7f7&#8243; background_enable_image=&#8221;off&#8221; background_position=&#8221;top_right&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;1&#8243; make_equal=&#8221;on&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f7f7f7&#8243; background_enable_image=&#8221;off&#8221; background_position=&#8221;center_right&#8221; custom_padding=&#8221;40px|40px|40px|40px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.5&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; background_enable_image=&#8221;off&#8221; custom_padding=&#8221;40px|40px|40px|40px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Scientific Articles&#8221; _builder_version=&#8221;4.21.0&#8243; text_font=&#8221;Montserrat|500||on|||||&#8221; text_text_color=&#8221;#353740&#8243; text_font_size=&#8221;16px&#8221; text_letter_spacing=&#8221;3px&#8221; custom_margin=&#8221;||||false|false&#8221; animation_direction=&#8221;bottom&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]Scientific Articles[\/et_pb_text][et_pb_divider color=&#8221;#E02B20&#8243; divider_weight=&#8221;3px&#8221; _builder_version=&#8221;4.19.5&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;60px&#8221; custom_margin=&#8221;15px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_divider][et_pb_blurb title=&#8221;PHIP-associated Chung-Jansen syndrome: Report of 23 new individuals&#8221; url=&#8221;https:\/\/chungjansensyndrome.eu\/PHIP-associated_Chung-Jansen_syndrome_Report_of_23.pdf&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xf1c1;||fa||400&#8243; icon_color=&#8221;#0d4b7e&#8221; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;15px&#8221; admin_label=&#8221;PHIP-associated Chung-Jansen syndrome: Report of 23 new individuals&#8221; 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