Stories

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Sandra About Her Son Joshua

Sandra About Her Son Joshua

EXPERIENCE STORY Sandra About Her Son JoshuaJoshua is 14 years old now and has been diagnosed with Chung-Jansen syndrome. He is adopted and we are in very close contact with his biological parents. Joshua's mother also has the same syndrome.  When Joshua was little he...

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Diana about her daughter Natalya

Diana about her daughter Natalya

Natalya Rose was born on April 10, 2009 . We got the diagnosis of PHIP related disorder / Chung-Jansen syndrome just a few years ago. Natalya has struggled her whole life having different kinds of psychological and physical problems.

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