Stories, experiences and more
Jordan Smelley has Chung-Jansen syndroom and uses his life experiences to help others as a peer support.
Christy Leiter talks and writes about her daughter Eleonor who has Chung-Jansen syndrome on her instagram account and youtube channel.
Natalya Rose was born on April 10, 2009 . We got the diagnosis of PHIP related disorder / Chung-Jansen syndrome just a few years ago. Natalya has struggled her whole life having different kinds of psychological and physical problems.
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