Online or Live Events
On this page all relevant online or live events are listed that can be attended bij parents, caregivers or adults with the syndrome. These events can include information about Chung-Jansen syndrome or information in general about rare diseases / syndromes.

Family video meeting with Dr. Chung

13th of januari 2024, 12:00 East Coast US Time

Family video meeting with Dr. Chung (for parents/caregivers and adults with the syndrome).
If you are a parent/caregiver of a child with Chung-Jansen syndrome or an adult with the syndrome you can register via the private Facebook group ‘PHIP kids’.