Agenda
Online or Live Events
On this page all relevant online or live events are listed that can be attended bij parents, caregivers or adults with the syndrome. These events can include information about Chung-Jansen syndrome or information in general about rare diseases / syndromes.
First European PHIP/Chung-Jansen Syndrome Conference, November 12th 2027
November 12th 2027, Amsterdam UMC
Save the date: First European PHIP/Chung-Jansen Syndrome Conference. Further information about the programme and registration will follow!
Family Video Meeting with Dr. Chung and her team
November 2nd 2024 at 12:00 PM East Coast US Time
If you are a parent/caregiver of a child with Chung-Jansen syndrome or an adult with the syndrome you can register via the private Facebook group PHIP Kids
Family video meeting with Dr. Chung
13th of januari 2024, 12:00 East Coast US Time
Family video meeting with Dr. Chung (for parents/caregivers and adults with the syndrome).
If you are a parent/caregiver of a child with Chung-Jansen syndrome or an adult with the syndrome you can register via the private Facebook group ‘PHIP kids’.