Now that the gene abnormalities associated with Chung-Jansen syndrome have been known for some years, PHIP
pops up in more studies. However, much is still unclear about the impact of the various abnormalities in the gene on (psychological) health. There is an increasing need for multidisciplinary help for patients with the syndrome. Because there is no expertise center or clinic of their own, patients are dependent on help elsewhere.
All news about (medical) knowledge about PHIP and the appropriate care is listed here.