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info@chungjansensyndrome.eu
  • About PHIP
    • Syndrome in short
    • Appearance
    • Psychological Development and Behaviour
    • Learning
    • Physical Problems
    • Inheritance
  • Therapy
    • Social Emotional Development
    • Cognitive Development
    • Motor Development
    • Stimulus Processing
  • News
  • Stories
  • Research
  • Documents
  • About this site

Documents

 

Documents

On this page you can find all documentation (downloads) with information on the syndrome, which can be helpful in explaining the syndrome to friends, family, care providers or other people who are involved.

Handouts

Handout with information on the syndrome in different languages.

Flyer English (EN)

Flyer Spanish (ES)

Flyer Dutch (NL)

Flyer French (FR)

Flyer German (DE)

Flyer Italian (IT)

Flyer Portuguese (PT)

Chung-Jansen Syndrome

About PHIP

Syndrome in Short
Appearance
Psychological Development and Behaviour
Learning
Physical Problems
Inheritance

Therapy

Social Emotional Development
Cognitive Development
Motor Development
Stimulus Processing

Stories

Sandra About Her Son Joshua

EXPERIENCE STORY Sandra About Her Son JoshuaJoshua is 14 years old now and has been diagnosed with Chung-Jansen syndrome. He is adopted and we are in very close contact with his biological parents. Joshua's mother also has the same syndrome.  When Joshua was little he...

Jordan about himself

Jordan Smelley has Chung-Jansen syndroom and uses his life experiences to help others as a peer support.

Christy about her daughter Eleonor

Christy Leiter talks and writes about her daughter Eleonor who has Chung-Jansen syndrome on her instagram account and youtube channel.

Diana about her daughter Natalya

Natalya Rose was born on April 10, 2009 . We got the diagnosis of PHIP related disorder / Chung-Jansen syndrome just a few years ago. Natalya has struggled her whole life having different kinds of psychological and physical problems.

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lovewhatmatters.com

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sparkforautism.org

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davidsusman.com

Links

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omin.org

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orpha.net

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rarechromo.org

YouTube

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PHIP Family Meeting 2018

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Living With Chung-Jansen Syndrome

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PHIP Family Meeting 2022

Contact

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info@chungjansensyndrome.eu

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Joyce Sonneveld

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