by dennisjansen | Aug 9, 2026 | Geen categorie, News EN
From July 23 to 25, the first international conference for Chung-Jansen families was held in Boston. Children with CJS, their parents, and leading experts—including Dr. Wendy Chung, Prof. Dr. Mieke van Haelst and Dr. Lotte Kleinendorst—had the opportunity to share...
by dennisjansen | Aug 9, 2026 | News EN
Following the results of a practice-oriented study conducted among parents of children with Chung-Jansen syndrome, a brochure for parents has been published. The study was carried out in 2025 by Joyce Sonneveld, an applied psychologist and mother of a daughter with...
by dennisjansen | May 21, 2026 | News EN
From July 23 through July 25, 2026, the first international Chung-Jansen conference will take place in Boston. You can still register via the registration page. For more information about the conference, please visit the conference information page. Read the...
by dennisjansen | Nov 2, 2024 | News EN
On November the 2nd another PHIP Family (video) meeting took place in which Dr. Wendy Chung discussed the phenotypes of the current research group and the different research projects PHIP is included in. She called on parents/caregivers or adults with the syndrome to...
by dennisjansen | Mar 12, 2024 | News EN
Recently, the team of Dr. Wendy Chung published an article with the latest insights from the Natural History study. The number of participants in the study is growing and with it the insight into the phenotypes of people with the syndrome. These results were also...
by dennisjansen | Jan 16, 2023 | News EN
Recently an article was published describing the characteristics of 23 individuals with Chung-Jansen syndrome comparing the facial features with those of two other syndromes. You can click on the link to view the full article as a...
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