Following the results of a practice-oriented study conducted among parents of children with Chung-Jansen syndrome, a brochure for parents has been published. The study was carried out in 2025 by Joyce Sonneveld, an applied psychologist and mother of a daughter with Chung-Jansen syndrome, as part of her graduation research for the PHIP outpatient clinic at Amsterdam UMC. The brochure is based on parents’ experiences in caring for and raising both young children and adults with Chung-Jansen syndrome. It is intended as a supportive resource and may offer parents and those around them both recognition and new insights.
The brochure can be downloaded here.
The brochure can be downloaded here.