by dennisjansen | Jan 16, 2023 | News EN
Recently an article was published describing the characteristics of 23 individuals with Chung-Jansen syndrome comparing the facial features with those of two other syndromes. You can click on the link to view the full article as a...
by dennisjansen | Oct 5, 2022 | News EN
Introducing the official international logo of Chung-Jansen syndrome, created by one of the parents of a child with Chung-Jansen syndrome. “This logo represents strength in its boldness. It depicts that our people with CJS will reach the stars with the support...
by dennisjansen | Sep 24, 2022 | News EN
In this online presentation, Dr. Wendy Chung discusses the latest developments in her ongoing research into the abnormalities of the PHIP gene and answers questions from attendees. The main findings from a recently published article and a new small-scale study among...
by dennisjansen | Sep 25, 2021 | News EN
Dr. Chung has held an online presentation about her ongoing study of the PHIP-gene abnormalities. She calls on patients or their parents/caregivers to register for her study and emphasizes the importance of participation. She also discussed the opportunity for...
by dennisjansen | Feb 26, 2021 | News EN
In Amsterdam UMC Sandra Jansen, clinical geneticist in training, and Agnies van Eeghen, physician for individuals with intellectual disability, started an outpatient clinic for children and adults with Chung-Jansen syndrome. For more information, please visit...
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