PHIP Family Meeting Video

PHIP Family Meeting Video

Recently, the team of Dr. Wendy Chung published an article with the latest insights from the Natural History study. The number of participants in the study is growing and with it the insight into the phenotypes of people with the syndrome. These results were also...
Diana about her daughter Natalya

Diana about her daughter Natalya

Stories Diana about her daughter Natalya Natalya Rose was born on April 10, 2009. We got the diagnosis of PHIP related disorder / Chung-Jansen syndrome just a few years ago. Natalya has struggled her whole life having different kinds of psychological and physical...
PHIP Family Meeting Video

Christy about her daughter Eleonor

Stories Christy about her daughter Eleonor Christy Leiter talks and writes about her daughter Eleonor who has Chung-Jansen syndrome on her instagram account and youtube channel You can read Eleonor’s story at...
PHIP Family Meeting Video

Jordan about himself

Stories Jordan About Himself Jordan Smelley has Chung-Jansen syndroom and uses his life experiences to help others as a peer support. http://davidsusman.com https://centerforadolescentstudies.com...