by dennisjansen | Nov 8, 2023 | Agenda EN
If you are a parent/caregiver of a child with Chung-Jansen syndrome or an adult with the syndrome you can register via the private Facebook group ‘PHIP kids’ You can click on the link to view the facebook...
by dennisjansen | Mar 9, 2023 | Stories EN
Stories Diana about her daughter Natalya Natalya Rose was born on April 10, 2009. We got the diagnosis of PHIP related disorder / Chung-Jansen syndrome just a few years ago. Natalya has struggled her whole life having different kinds of psychological and physical...
by dennisjansen | Mar 9, 2023 | Stories EN
Stories Christy about her daughter Eleonor Christy Leiter talks and writes about her daughter Eleonor who has Chung-Jansen syndrome on her instagram account and youtube channel You can read Eleonor’s story at...
by dennisjansen | Mar 9, 2023 | Stories EN
Stories Jordan About Himself Jordan Smelley has Chung-Jansen syndroom and uses his life experiences to help others as a peer support. http://davidsusman.com https://centerforadolescentstudies.com...
by dennisjansen | Mar 9, 2023 | Stories EN
Stories Sandra About Her Son Joshua Joshua is 14 years old now and has been diagnosed with Chung-Jansen syndrome. He is adopted and we are in very close contact with his biological parents. Joshua’s mother also has the same syndrome. When Joshua was little he was too...
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