• Dutch
  • English
  • Spanish
  • About PHIP
    • Syndrome in Short
    • Appearance
    • Psychological Development & Behaviour
    • Learning
    • Physical Problems
    • Inheritance
  • Therapy
    • Social Emotional Development
    • Cognitive Development
    • Motor Development
    • Stimulus Processing
  • News
    • Agenda
    • Research
    • Documents and Media
    • Stories
  • About us
  • Contact

Adults with Chung-Jansen welcome in Erasmus MC

by dennisjansen | Nov 2, 2020 | News EN | 0 comments

Grown ups with the syndrome are welcome in Erasmus MC for multidisciplinair healthcare in the center for hereditary and congenital disorders, founded by Dr. Laura de Graaff.

https://erasmusmcfoundation.nl/

Submit a Comment Cancel reply

You must be logged in to post a comment.

Chung-Jansen Syndrome

About PHIP

Syndrome in Short
Appearance
Psychological Development and Behaviour
Learning
Physical Problems
Inheritance

Therapy

Social Emotional Development
Cognitive Development
Motor Development
Stimulus Processing

Stories

Diana about her daughter Natalya

Natalya Rose was born on April 10, 2009 . We got the diagnosis of PHIP related disorder / Chung-Jansen syndrome just a few years ago. Natalya has struggled her whole life having different kinds of psychological and physical problems.

Christy about her daughter Eleonor

Christy Leiter talks and writes about her daughter Eleonor who has Chung-Jansen syndrome on her instagram account and youtube channel

Jordan about himself

Jordan Smelley has Chung-Jansen syndroom and uses his life experiences to help others as a peer support.

Sandra About Her Son Joshua

Joshua is 14 years old now and has been diagnosed with Chung-Jansen syndrome. He is adopted and we are in very close contact with his biological parents. Joshua’s mother also has the same syndrome.

h

lovewhatmatters.com

h

sparkforautism.org

h

davidsusman.com

Links

h

omin.org

h

orpha.net

h

rarechromo.org

YouTube



PHIP Family Meeting 2022



PHIP Family Meeting 2018



Living With Chung-Jansen Syndrome

Contact



info@chungjansensyndrome.eu



Joyce Sonneveld

Facebook



Facebook NL



Facebook DE



Facebook World



Facebook World (Public)

Designed by Denzine.nl