Learning

Learning difficulty and intellectual disability

Children with the syndrome are more hindered in learning gross and fine motor skills than other children of the same age.

Frustration

Children sometimes seem lazy and stubborn. Frustration about not being able to perform a certain task often lies behind this behavior. Tasks and assignments often must be repeated several times before children understand what is expected of them and how to perform it.

Speaking & Performing

There often is a gap between verbal and performal skills. Individuals with the syndrome are verbally well developed. They can express themselves well, but use words that are not appropriate for their age. They have more problems with performal skills, which include organizing and visiospatial function. Because of this gap, the capabilities of children and adults are often overestimated which can increase behavioral problems and fatigue.

Cognition

Assessing cognitive skills in young children can be difficult because of the additional problems as ADHD and fatigue. It can be hard for them to focus and keep their attention to things they are asked to do. When tested, the IQ of most children is around 80, with peaks up and down. On social emotional level they are often a lot younger than their actual age.

Education

School can be a big challenge for children with Chung-Jansen syndrome. Extra help and support is often needed. If this proves not to be feasible, children can go to special education where more attention is paid to the specific problems the child is dealing with.

Living

Most young adults live with their parents, a small number live accompanied or independently with outpatient support. There are also adults who are married and have children.

Chung-Jansen Syndrome

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