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Adults with Chung-Jansen welcome in Erasmus MC

Adults with Chung-Jansen welcome in Erasmus MC

by D. Jansen | Nov 2, 2020 | News

Grown ups with the syndrome are welcome in Erasmus MC for multidisciplinair healthcare in the center for hereditary and congenital disorders, founded by Dr. Laura de Graaff....

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  • PHIP Family Meeting 2022
  • Sandra About Her Son Joshua
  • PHIP Family Meeting 2021
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  • Christy about her daughter Eleonor

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    Chung-Jansen Syndrome

    About PHIP

    Syndrome in Short
    Appearance
    Psychological Development and Behaviour
    Learning
    Physical Problems
    Inheritance

    Therapy

    Social Emotional Development
    Cognitive Development
    Motor Development
    Stimulus Processing

    Stories

    Sandra About Her Son Joshua

    EXPERIENCE STORY Sandra About Her Son JoshuaJoshua is 14 years old now and has been diagnosed with Chung-Jansen syndrome. He is adopted and we are in very close contact with his biological parents. Joshua's mother also has the same syndrome.  When Joshua was little he...

    Jordan about himself

    Jordan Smelley has Chung-Jansen syndroom and uses his life experiences to help others as a peer support.

    Christy about her daughter Eleonor

    Christy Leiter talks and writes about her daughter Eleonor who has Chung-Jansen syndrome on her instagram account and youtube channel.

    Diana about her daughter Natalya

    Natalya Rose was born on April 10, 2009 . We got the diagnosis of PHIP related disorder / Chung-Jansen syndrome just a few years ago. Natalya has struggled her whole life having different kinds of psychological and physical problems.

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    PHIP Family Meeting 2022

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